A carer is someone who provides unpaid care and support to family members and friends who have a disability, mental illness, chronic condition, terminal illness or who are frail aged . Support services can encompass access to resources, support groups, respite care and advocacy support. It is important for all carers to take time to nurture themselves to be able to best tend to their loved ones. The services below are available within the NT to assist Carer’s needs:
Membership with Autism NT provides:
- A safe, non-judgemental environment for families with a diagnosis (or suspected diagnosis) of Autism Spectrum Disorder (ASD)
- access to confidential in-person or phone discussions with an ASD experienced staff member
- access to our customized carer support groups
- the ability to borrow from our extensive resource library
- discounted rates to events and workshops sponsored by Autism NT
- local, in-depth knowledge of service providers and services
ph: 8948 4424
Carers NT is a not-for-profit, community-based organisation and registered charity dedicated to improving the lives of family carers living in the Northern Territory. Carer’s NT offer the following services:
- Carer Respite
- Carer Support Programs
- Better Start for Children with Disability
- Ageing Carers of Someone with a Disability
- Volunteer Social Support Service
- Young Carers
- Social Support and Education
- Community Partners Program
- ‘Prepare to Care‘ Hospital Program
- Mental Health Carers Program
Carpentaria Disability Services (CDS)
CDS is a “Not for Profit” Organisation funded by the government to provide services to people with a disability. Under its funding agreement with the Department of Health, CDS offers three types of highly valued respite services:
- Flexi Respite: This stream aims to empower and support families that include a person with disability by giving them the freedom to organise own respite and choose where, when and who shall provide the care.
- Connections Respite: Links our families with another host family in the community who have expressed an interest in supporting individuals with a disability. Connection Carers aim to provide a supportive family home environment in which people with disability can develop new friendships.
- Home Away From Home: HAFH allows people with a disability to spend regular, planned short periods of time in a home environment away from their home. This model includes longer stays for remote clients.
p: 08 8945 4977 or After Hours: 0413 059 732
Mental Illness Fellowship Australia
Mental Illness Fellowship of Australia (NT), (MIFANT) is a non-government organisation providing services for people living with a mental illness and their carer’s and families. MIFANT’s range of carer programs provides information and education about mental illness, being a Carer and the mental health system. Services also include respite, individual and group support and advocacy.
Carer Support Coordinator
This site provides links to find practical support or services in the Northern Territory (NT)
Generally, siblings of children with ASD adjust well and aren’t significantly affected in the long term. Often, siblings of children with disability are more caring, compassionate, independent and tolerant.
Still, it can take time for children to adapt to an ASD diagnosis in their sibling:
- Siblings of children with ASD can be vulnerable to psychological problems later on.
- Brothers can be more vulnerable to these problems than sisters.
- Younger siblings can be more vulnerable than older siblings.
Children react to the same situation in different ways. They might seem upset for no apparent reason and act out. It could take a while to understand what really making them has upset. It might be that they’re feeling:
- jealous of the amount of time that you’re spending with their sibling
- discouraged from playing with their sibling who doesn’t seem to want to play with them
- angry if they think you have different expectations for them compared to their sibling – for example, tolerating aggressive behaviour, or letting their sibling get out of household chores
- protective of their sibling and angry if others make fun
- embarrassed by people staring and by unwanted attention during family outings
- guilty for having negative feelings, such as embarrassment or anger, towards their sibling
- concerned that the added stress is affecting your wellbeing and your relationship with your partner – for example, some children might worry that you and your partner might separate or divorce
- concerned or resentful about any future role as carer for their sibling.
Autism NT and Carer’s NT can provide you with information and resources for siblings. There are also sibling recreation and support groups available. A list of useful websites relevant for siblings:
- Autism Speaks https://www.autismspeaks.org/blog/2015/02/02/20-things-you-experience-neurotypical-sibling
- Positive Partnerships http://www.positivepartnerships.com.au/mental-health-wellbeing-students-autism
- Raising Children http://raisingchildren.net.au/articles/autism_spectrum_disorder_siblings.html